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Rank: Advanced Member  Groups: Registered
Joined: 12/16/2009 Posts: 156
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hello i have had the visit I have had the scan and i have another appoinment in two weeks the consultante said it did not look as if there is any more damage then the last scan i had but the swelling and pain is due to fybromyalgia and he is going to start me on some medication to keep the RA at the level it is at and try and work on the fibro so i am still taking the maxiam pain killers and feeling like somthing that has been in the dryer for a month. sorry for moaning but it is getting me down and i am feeling horrible but hey lets hope the new meds he comes up with will make me feel better. can i ask a question does any one have twiching legs when you lay in bed ?
all the best to you all
hugs and Kissess
Audrey. x
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Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
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Hi Audrey
I got really bad twitching legs before I got diagnosed some two years ago now, however I still get it occasionally at night if it really gets me down I stick my feet in hot water - can t really had a bath in the middle of the night !
Hope they are able to get you on the new medication as soon as poss.
Take care Julia x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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hi ya
Have a look up about "restless legs" I get this from the fibro I think- there is a mention about it www.fibrohugs.com
keep posting, we are here and listening!
Jenni xxhow to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 3/28/2011 Posts: 956 Location: North Preston
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Hi Audrey
Sorry you are feeling so rough at the moment. I hope you get your meds sorted soon and they start to work for you. I have not suffered from that kind of problem with my legs but as Jenni says there is a recognised problem and even called 'restless legs syndrome'.
Sheila x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Audrey,
You really are going through it at the moment! It's good that your consultant is going to start you on some new medication, I hope it works well for you.
Love Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Hello Audrey
Sorry to hear that things not good at the moment. Hope things improve quickly
I get restless legs, and boy how horrid it is . It makes me bad tempered and angry
at myself. Not sure how to get rid of it though. I don't have it every night I get
it couple nights a week.
Hopefully someone can enlighten us
Rose
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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one treatment is to hold the leg down (gently) until it settles also, try getting a blood test to check your iron levels is a wise move...
some more info here:
http://www.patient.co.uk...tless-Legs-Syndrome.htm
Hope they settle.
Jenni xx
how to be a velvet bulldoser
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Rank: Advanced Member
Groups: Registered
Joined: 5/19/2010
Posts: 384
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Hi,
Restless leg syndrome is something I have suffered with for many years, but usually when I am overtired or in the hot weather.
I usually hold a cold flannel on them and also use cooling leg gel from the body shop.
Anne x
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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Hi Audrey Hope things improve for you soon and you get started on suitable medication soon. I have had restless leg syndrome for donkeys years (what haven't I had??). I have it for a while and then it disappears for a while. Despite keeping a diary I haven't been able to relate it to anything much at all, unfortunately! Mine tends to start in the evening, about 20 minutes after I've sat down to watch TV, you know the feeling? Just when you've got comfortable! I find the best thing is gentle stretches to release the tight muscles. My GP prescribed amitriptylline which seemed to help ... until my body got used to them!! Apparently they're good for nerve pain. Lyn 
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Rank: Advanced Member Groups: Registered
Joined: 12/16/2009 Posts: 156
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Hi
thanks for the replys everyone and like lyn says it is at night when my legs are the worst but at the minute i am expecting anything to happen till i start my new meds next month.
also can i say thanks for listening and talking to me it does help a lot
have a nice day
Audrey.
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